IOWA PKU Foundation

Minutes

Meeting Held May 15, 2005

 

 

Present: Kathleen Cady, Cory Clasen, Sarah Clasen, Laura Conway,

               Rob McGuire, Chris McGuire, Blythe Stanfel

Absent: Landra Carty, Jolene Johnson, Judy Miller, Cheryl Stimson, Melinda White

 

Meeting Called to order at 1:12pm by Blythe Stanfel

 

Discussion:

 

  1. Money in account—Treasurer Rob McGuire reported a balance of $6800.00
  2. Legislative Action—Blythe Stanfel reported bill did not pass, yet provided education both to legislatures regarding PKU and to attendees regarding the legislative process.  Further legislative work to continue.
  3. Website—Kathy Cady reported that the minutes from meeting have been posted on the IPF website, relocation of the minutes will be done to facilitate review.
  4. Newborn brochure—Samples were passed around for committee member’s review.  Kathy Cady will complete brochure and then it will be ready for print.  Scott Conway will submit request to Casey’s for donation of brochure printing.
  5. Newborn gift sets—Blythe Stanfel passed around a sample of the IPF newborn onesie for members to view.  Continued work on finalization of contents of newborn gift set will occur.
  6. Newsletter—Landra Carty continues to work on 1st newsletter which will be sent out after the June picnic.
  7. Strategic planning update:  Tami and Chris continue to work on submitting request for grant from IA Clinic.  Blythe provided them with specific costs of newborn gift sets to send with grant application.
  8. Wal-Mart corporate offices:  Laura Conway continues to work with Wal-Mart corporate to find proper channels for requesting donation.
  9. Fundraising—Members will continue to brainstorm on fundraising ideas.  Some ideas were brought to meeting.

                        -Younkers Community Day November 19, 2005

                        -HyVee, Kum-N-Go cards

                        -Run/Walk

10.      Business/Tax information—Blythe Stanfel provided information regarding “going

      under” Greater Des Moines Community Foundation.

      Fee:  1% of balance is yearly fee

      Possible 7% return per year

      Advantages:

      -joining larger pool for investment advantages, accounting, and tax reporting.

      -reducing time spent on the management of funds, allowing board members to                         focus on mission and building endowment.

      -adding visibility to cause by being part of Greater Des Moines Community                         Foundation which can help in marketing and fundraising.

      -taking advantages of their training opportunities.

      Follow-up:  (Questions submitted by committee members which Blythe will                           research)

      -Obtain list of other small foundations “under” Greater Des Moines Community                         Foundation for reference.

      -What is the process of obtaining funds for foundation use?  How long is the               process?

      -Does this add creditability?

      -Does this still provide visibility to our cause?

      -Does Greater Des Moines Community Foundation itself receive donations?  If                      so, how are they dispersed?

 

11.  IPF picnic:

 

            Picnic date:  June 25th, 2005 at Saylorville Lake, Cottonwood Park beginning at

            1:00 pm, camping available at Prairie Flower with cost of approximately $16.00

            Each family will be asked to bring a PKU friendly and Non PKU dish.

 

            Activities for children to include:

            --Cotton candy machine

            --Face painting

            --Piñata

            --Water balloons

            --Raffles

 

            *We will hold a short informational meeting for adults to update them on the IPF      and encourage others to assist in fundraising, activities and involvement.

 

12.  Assignments for picnic:

           

            Scott/Laura Conway:  Submit request for donation to Casey’s for coolers,             hamburgers, hotdogs, plates, utensils, gas coupons and packets of ketchup and             mustard.  Charcoal, lighter fluid.  Place signs on picnic day.  Tickets for raffles.

 

            Kathy Cady:  Contact food companies with specific date of picnic for donation,

            make up gift baskets for drawings.

           

            Sarah/Cory Clasen:  obtain pop for picnic.

 

            Rob/Chris McGuire:  DQ Star kisses, tablecloths, piñata, give away gifts for kids,     contact local newspaper to do an article, contact a clown to come to picnic.

 

            Blythe Stanfel:  Develop mailer for picnic and contact Judy Miller regarding             mailing via the U of I, contact MC Donald’s for cooler and Hy-Vee for donations.

           

            *Each board member to bring a cooler of water balloons.

 

 

  1. Other ideas brought up for further discussion.

            -Having one large event per year to begin with to limit workload and to be                                  consistent.

            -Other parents are doing fundraising for IPF

            -Education day being offered at U of I regarding legislative process for next years                                 bill.

            -Increase newborn screening fee.

            -Submission of grant letters to Meade-Johnson and Ross Metabolics

 

 

 

 

 

Next Meeting to be determined.  Dates being reviewed are August 27th, 2005 or September 17th 2005 in Dubuque.  Location in Dubuque also to be determined.  Sarah and Cory Clasen to keep members up to date.

 

 

 

Respectively Submitted:

Laura J. Conway

Board Secretary, IPF