The
board of directors consists of 11 voting members and nonvoting Honorary and Ex Officio
members.
Officers:
Officer positions consist of President, Vice President, Secretary, and Treasurer.
President:
Blythe Stanfel
Vice President: Kathleen Cady
Secretary: Laura Conway
Treasurer: Rob McGuire
Committees:
|
Committee |
Committee
Objective |
|
Legislative |
Work
through state and local politicians to achieve mandatory insurance coverage
of foods and formulas |
|
Hospitality |
Plan social events (coffees, picnics, camps, cookie exchanges, etc.) and assist in new member orientation upon diagnosis |
|
Fundraising |
Plan
and conduct fundraising events (raffle, shop-n-share, product sales, etc.)
and coordinate fundraising appeals to members and donors |
|
Communications and Education |
Publish
Newsletter, brochure, maintain internet site, and coordinate other
communications to organization members. Monitor, gather and disseminate
information to members dealing with PKU, coordinate educational activities,
handle maternal PKU related matters, and monitor PKU related research efforts |
|
|
|